VASCERN 1st Annual Seminar October 2017 PARTICIPANTS LIST
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1 VASCERN 1st Annual Seminar October 2017 PARTICIPANTS LIST HCP Member Representatives Title SURNAME First Name Healthcare Providers Dr BEHRENDT Christian University Medical Center Hamburg-Eppendorf (Germany) Dr BELVA Florence AZ Sint-Maarten (Belgium) Dr BENKE Kalman Semmelweis University (Hungary) Dr BJORCK Erik Karolinska University Hospital (Sweden) Prof. BOILEAU Catherine APHP Hospital Bichat (France) Prof. BOON Laurence Cliniques Universitaires Saint-Luc (Belgium) Dr BOULETI Claire APHP Hospital Bichat (France) Prof. BUSCARINI Elisabetta Asst Ospedale Maggiore Crema (Italy) Dr COOTE Nicky Hammersmith Hospital, Imperial College Healthcare NHS Trust (UK) Prof. DE BACKER Julie Ghent University Hospital (Belgium) Dr DE WAARD Vivian AMC Amsterdam (The Netherlands) Dr DEVOOGDT Nele University Hospitals Leuven (Belgium) Dr DI TORO Alessandro IRCCS Foundation Policlinico San Matteo (Italy) Dr DIOCIAIUTI Andrea Bambino Gesù Children Hospital (Italy) Dr DROEGE Freya Essen University Hospital (Germany) Dr DUPUIS-GIROD Sophie Hospices Civils de Lyon (France) Dr DVORAKOVA Veronika Our Lady s Children s Hospital Crumlin (Ireland)
2 Dr EMMANUEL Yaso Guys and St Thomas NHS Foundation Trust (UK) Dr FRANK Michaël APHP Hôpital européen Georges Pompidou (HEGP) (France) Dr GAETANO Raffaella ASST-Fatebenefratelli-Sacco (Italy) Prof. GEISTHOFF Urban Essen University Hospital (Germany) Dr GHAFFARPOUR Nader Karolinska University Hospital (Sweden) Dr GIACALONE Guido AZ Sint-Maarten (Belgium) Prof. GIUSTI Betti Careggi Hospital (Italy) Prof. GROENINK Maarten AMC Amsterdam (The Netherlands) Prof. JEUNEMAITRE Xavier APHP Hôpital européen Georges Pompidou (HEGP) (France) Prof. JONDEAU Guillaume APHP Hospital Bichat (France) Dr KEELEY Vaughan Derby Teaching Hospitals NHS Foundation Trust (UK) Dr KEMPERS Marlies Radboud university medical center (The Netherlands) Prof. KJELDSEN Anette Odense University Hospital (Denmark) Dr LENATO Gennaro Mariano Azienda Ospedaliero-Universitaria Consorziale di Bari Policlinico-Giovanni XXIII Bari (Italy) Prof. LOEYS Bart UZA-Antwerp University Hospital (Belgium) Dr MAGER Hans-Jurgen St. Antonius Hospital (The Netherlands) Prof. MANSOUR Sahar St George's Hospital, London (UK) Dr MATHIESEN TØRRING Pernille Odense University Hospital (Denmark) Dr MILLERON Olivier APHP Hospital Bichat (France) Dr PAGLIALONGA Alessia ASST-Fatebenefratelli-Sacco (Italy) Prof. PEPE Guglielmina Careggi Hospital (Italy) Dr PINI Alessandro ASST-Fatebenefratelli-Sacco (Italy) RICHES Katie Derby Teaching Hospitals NHS Foundation Trust (UK) Dr ROBERT Leema Guys and St Thomas NHS Foundation Trust (UK) Prof. RÖSSLER Jochen Medical Center - University Freiburg (Germany) Prof. SABBÀ Carlo Azienda Ospedaliero-Universitaria Consorziale di Bari Policlinico-Giovanni XXIII Bari (Italy) Prof. SALMINEN Païvi Helsinki University Hospital (Finland) Prof. SCHULTZE KOOL Leo Radboud university medical center (The Netherlands) Dr SERIO Alessandra IRCCS Foundation Policlinico San Matteo (Italy) Prof. SHOVLIN Claire Hammersmith Hospital, Imperial College Healthcare NHS Trust (UK) Prof. SUOMINEN Sinikka Helsinki University Hospital (Finland) Prof. SZABOLCS Zoltan Semmelweis University (Hungary) Dr THOMIS Sarah University Hospitals Leuven (Belgium) Dr UGOLINI Sara IRCCS Foundation Policlinico San Matteo (Italy) Dr VAN DE LAAR Ingrid Erasmus Medical Center, Rotterdam (The Netherlands) Dr VAN DUINEN Kirsten Drachten Hospital (The Netherlands) Dr VIGNES Stéphane APHP, Cognacq-Jay Hospital, HEGP, Paris (France) Prof. VIKKULA Miikka Cliniques Universitaires Saint-Luc (Belgium) Dr WILDERO - VAN WOUWE Liesbeth Ghent University Hospital (Belgium)
3 Patient Group (epag) Representatives SURNAME First name Patient Organisations ALDERWEIRELDT Romain ABSM Association Belge du Syndrome de Marfan (Belgium) ASSIES Natascha NLNet (The Netherlands) BOTELLA Luisa HHT Espana (Spain) ERASME Didier AMRO (HHT France) FAVALLI Valentina Magica Onlus (Italia) FEDERICI Paolo HHT Onilde Carini (Italia) GRABOWSKI Christina Morbus Osler (Germany) GRUNERT Jurgen Ehlers-Danlos-Initiative e.v. (Germany) HAIML Franziska VASCAPA (Belgium) TOUBOULIE Patrice MARFANS (France) VAN DEN BOSCH Caroline HEVAS NT (The Netherlands) VAN DER VELDEN Ange LGD Alliance Europe (LGD Alliance Nederland) (The Netherlands)
4 Stakeholders SURNAME First name Organisations BARRASSE Viviane APHP Europe Department (France) BOLZ-JOHNSON Matt EURORDIS CARTA Anna European Commission, DG SANTE, ERN Team CHAUCHAT Aymeric APHP HUPNVS Director Hospital Louis Mourier (France) ELIASZEWICZ Muriel ERN Board of Member States French Representative, Ministry of Health (France) QUERCY Alice Ministry of Health (France) HEDLEY Victoria RD-Action JAMOT Laure RADICO (France) JULKOWSKA Daria European Joint Programme on Rare Diseases Research MISZTELA Jean-Marie European Commission, ERN IT Team OLRY Annie ORPHANET PARIENTE Jessica Filière maladies rares FAVA-Multi (French network for Rare vascular diseases) Dr ROOS Marco Leiden University Medical Centre (The Netherlands) WEINBACH Jérôme RADICO (France) WIEHE Lenja EURORDIS
5 VASCERN Coordination Team SURNAME First name Organisation BARR Natasha APHP Hospital Bichat, VASCERN Project Officer DEPARIS Hélène APHP Hospital Bichat, VASCERN Administrative Assistant HURARD Marine APHP Hospital Bichat, VASCERN Project Manager
6
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